no sleep and regression

well its official lexi hasn't sleep besides 15 minute naps since before her surgery. we went to the doctor today and she told me to take lexi off all pain meds and see if that makes a difference. the doctor said there is no reason she should be in pain since her throat is healing just fine and her ears aren't infected. i don't know what to do because shes not eating and not really drinking and hardly sleeping. also since the surgery she has regressed and is no longer using the toilet even the little bit she was going. i really hope she starts using the potty again cuz shes already 4 and buying pull ups is expensive. well ill update again in a couple days hopefully with some news of her sleeping lol

oh boy

last night lexi stayed up from 12 am monday until 3 am this morning with only 5 minute naps here and there. she finally went to sleep and was up at 7 and again at 9. of course this is after i called the nurse on call and had her page lexi's dr who switched her to tylenol with codiene. you would think that would knock her out but nope it didn't and it hasn't yet. she did eat a hot dog and a marshmellow today. i know its not on the list for allowed food but my neighbor offered it so i figured why not. she ate it all. i think the worse part of this is that shes not getting sleep and shes not on her schedule and you know with kids with autism she needs a schedule. i'm so tired but she wont go to sleep. i now know if i ever have another kid i will refuse to have there tonsils and adnoids out because this is the worse iv ever seen a child act. well pray for sleep cuz i need it and i know she needs it

update on how lexi is

shes doing ok i guess. shes eating a little more but still wont drink. last night was horrible she cried the whole night and there was nothing i could do to make her feel better. shes so tired today but refuses to sleep so i hope tonight will be a better night. on top of it all my tv broke the day of her surgery so today i went and bought me a new one. yup im proud to say say i now own a flat screen tv yay me lol. so how is everyones weekend going?

surgery went good

surgery went well. she went in at 8 and was out by 845. shes been very whiny and crying but otherwise shes doing good. i can't get her to drink but i did get her to eat 2 popcicles so that is a very good thing. i feel really bad for her but i think shes a tough little girl and will get over this really fast.

lexi's surgery is tomorrow

surgery is tomorrow. we have to be at the hospital at 7 and surgery will be at 8:15 or so. i'm nervous but i have came to the conclusion to just fully rely on god. its a simple surgery and people have the procedure done all the time. does it make it any easier no. especially since lexi is a difficult patient to say the least lol. i am gonna pack a bag just in case but i doubt we will be admitted. people say she may do really well so we shall see. ill update after surgery. by the way shes still not asleep shes in her room laughing which is good i guess.

almost time

so Friday is lexi's tonsillectomy and adnoidectomy and i'm getting a little nervous, i know everything will go OK its the fact that she will be in pain and she doesn't like to take medicine that worries me. i got her some applesauce and some popcicles so hopefully that helps her. another thing if you read this blog please follow it or let me know your reading it.

another diagnosis

well lexi's speech therapist miss kristin believes lexi not only has apraxia but she really believes she has an articulation disorder. An articulation disorder involves problems making sounds. Sounds can be substituted, left off, added or changed. These errors may make it hard for people to understand you.

Young children often make speech errors. For instance, many young children sound like they are making a "w" sound for an "r" sound (e.g., "wabbit" for "rabbit") or may leave sounds out of words, such as "nana" for "banana." The child may have an articulation disorder if these errors continue past the expected age. i swear at the rate shes going shes gonna have more diagnosis than i can count on my hand. 

what is apraxia

one of the diagnosis lexi has is apraxia. well technically shes global apraxic which means she just doesn't have oral apraxia it affects her whole body. 
Childhood Apraxia of Speech (CAS) is a motor speech disorder.  Children have trouble making speech sounds, not because of muscle weakness or paralysis, but because the brain has problems planning the movements needed for speech.  When it is most severe, children struggle to make sounds.  Children with a moderate or milder form struggle with syllables and words.The cause or causes of CAS is not well understood either.  It is a neurological disorder without any apparent brain injury.  Children seem to be born with CAS.  Hopefully, further research will be able to determine the cause or causes. now global apraxia refers  to motor planning deficits relating to arms, legs, fingers, etc. and “global apraxia” would be all of the above.  so there is a little about apraxia. 

yay for an update

nothing really new going on except i bought lexi a trampoline for the house so she can get the sensory she needs. also im going to buy beans and put them in a tub so she can play in that as well. today during speech her therapist worked with some fine motor stuff. she got a thing of pudding and let lexi play in it. let me tell you she had pudding up to her armpits lol. her therapist said she never seen someone so messy before. also we are kind of at a stand still with potty training. she keeps going in her pants when she shouldn't. anyone have any ideas? let us know if your new to the blog as well we like to know how many readers we have

stressed to the max

oh where to begin. i dropped my car off at the mechanic and borrowed my moms car so i would have a vehicle. well wouldnt you know her car broke so now i have my car back and praying it wont break down on me. i started to watch a 9 month old little girl and that didnt work out. lexi threw toys at her and spit on her. lexi also had a meltdown that lasted almost the whole day. when i say that i mean she screamed,cried, bit, threw things and was just very angry the whole entire day. that was very stressful. the doctor says she needs to be in social situations but how can she be if shes going to hurt other kids. i just wish she got along with other kids.  therapy went ok today. her therapist doesnt know how to help her. lexi is turning her voice off when the therapist asks to turn it on and vice versa and she said shes never met a child that did that. so now she has to try and find someone who has and see what they say about how to help her. one lesson i learned is lexi is far from a text book case. shes very unique