Sunday, September 30, 2012


so nothing new has really happened in the two weeks. the only really major thing right now is that im waiting on her doctors nurse to call me back with a solution to having lexi take her meds. she fights like no other and then spits them out. before you ask i have tried putting it in her drinks but she takes one sip and refuses to drink any more. don't ask me how she knows but she does. i'v also tried it in her food but if i try to get her to eat then she refuses and then i end up wasting food and medicine. i even thought if i rewarded her with a treat afterward it might help but nope she still spits it out. she doesn't just spit it out for me either. she spits out the meds for anyone. drs nurses and her grandma as well. so now i really have no idea how they are going to get her to take the meds. right now she has a cold and hasn't been sleeping really well at night. she goes to bed fine but then once 3am comes around she gets up and gets into every single thing you can imagine. i had to search for my glasses cuz she hid them from me. but other than that shes gone on a field trip and is going again on friday. well have a great week and hopefully i hear something back soon from the doctor

Wednesday, September 19, 2012

school, dr appointments and referrals

lexi has been doing really well in school. she's getting back to herself this week after a very off week last week after her seizure. shes still weak on her left side but hopefully that will get better as well. we had her appointment with her developmental pediatrician and that was the fastest appointment we have had with her. we got there at 1030 and was out at 11. the doctor came and got us and said that she wanted to make this very fast and easy because she understands that we spend alot of time in doctor offices so she didn't want to make us stay longer than necessary. i told her that lexi has started having seizures again so she got the blood work from her neurologist and increased her keppra to 3 1/2 mls twice a day. then she is referring us to neurogenetics down at rileys and most likely the sleep clinic down there as well since the sleep doctor there in the office doesn't want to help figure out how to get lexi's sleep apnea under control. she also is calling her neuro surgeon since lexi did have another seizure and is now weak on the left side to see what she says and to let her know what is going on. lots have been going on but i think we now have a routine going. just hope the keppra rage stops soon cuz i honestly didnt think that increasing the med would set her off that much but it has.

Tuesday, September 18, 2012

look whos learned to ride a bike with training wheels

yay lexi finally learned how to ride a bike with training wheels. its very big news since it took her a long time to learn to ride a tricycle. i have more updates coming soon but i wanted to share this video first.

Tuesday, September 11, 2012


well of course i just had to jinx lexi and she had another seizure on sunday.we have no idea what caused it although it happened when she was sleeping. the doctor ordered a keppra level and we will most likely increase the dose to hopefully get the seizures under control again. im upset because it was almost a year free.