Friday, January 16, 2015


this surgery has really sucked. i cant bare weight so now im confined to a wheel chair or knee walker and both are hard to use. the fact i have to lay down with my ankle propped up also makes it hard on me. never in my life have i ever stayed down like this. it just sucks and now my ankle is starting to itch and that just drives me crazy since i cant even reach it. the positive is lexi has been very helpful and willing get what i need. im hoping to be able to go home tomorrow but i guess it depends on when my mom will feel comfortable with me being home with lexi by myself.

Wednesday, January 14, 2015

had surgery

i had my surgery to fix my ankle yesterday. we got there at 9 and i didnt get taken back to have surgery until 1230. i woke up crying so hard because of the pain and i believe the affects of the anesthesia. i know it worried them enough to have the dr come and ask me what was wrong and then the nurse even went and asked the anesthesiologist if there was anything else they could do. they offered to do a nerve block but i declined and they gave me more pain meds. last night was rough im only able to sleep for 2 hrs at a time because i cant get comfortable enough to are some pics from what they did to my ankle and how much they wrapped it up to protect it

Friday, January 9, 2015

increasing meds and other remedies

lexi has not been sleeping well and has had an increase in seizures at night so wednesday i called the neurologist. her neurologist was out of the office but her nurse called the neuro and she decided to increase phenobarbital to 5mls in the morning and 10 at night.with that increase lexi slept the best shes slept in a week. her nurse did happen to talk to me about different remedies that just might help her seizures and has printed off them and will mail them to me. some even include essential oils. she also told me about a research being done down at the childrens hospital with cbd oil. the neuro and her nurse are going to look into seeing how to get lexi into the research because they feel lexi would be a good candidate since she failed the vns and multiple medicines. onto other news we got about 6 inches of snow and the kids around here have now had 2 snow days. i went out this morning to a huge snow drift in front of my garage so im guessing im not going anywhere anytime soon.

Sunday, January 4, 2015


winter has officially decided to come and it has started snowing just enough to make it slippery. i dislike snow but at the same time its nice because its finally gonna be cold enough for it to kill some of the germs. we have gotten lucky and lexi hasn't gotten the flu thats been going around. which is good since i'v been worried about if she would catch it. school starts back on tuesday and i think shes ready for it since she has been out of her routine for 2 weeks now. im hoping she will start being happier again once shes in school. they did finally find her a new teacher since her teacher quit to go work in another class room. im just hoping shes a good fit and will be great with lexi like the other teacher was. the best part is her para will still be there so she will see her and hopefully her para can help her adjust to a new teacher. shes been cranky today and im for one ready for her to go to bed lol. hope everyone has a great sunday

Friday, January 2, 2015

over a month

over a month since iv updated and alot has happened. first of all lexis doing good. she started phenobarbital and has responded well to it. she was suppose to go dec 18th to rileys to do the ketogenic diet clinic but the dr had an emergency so now we have to wait until feb 17th before she can go down. it would have been this month but i have to have surgery so i had to postpone clinic til then. shes done really good in school and had a good christmas. she has been having more accidents so i think its time to figure out whats going on with that.  as for me im having surgery on the 13th on my ankle and i wont be able to bear weight for up to 8 weeks. its gonna be very hard on me but im anxious to not be in pain anymore.hope everyone had a great christmas and new years