Friday, February 24, 2012

you've got to be kidding me right

so yesterday was Lexi's appointment with her developmental dr. we got there right on time and waited to be seen. but wouldn't you know that the doctor wasn't even there. she was over an hour away. so the nurse called her and we talked on the phone. she said nothing about Lexi's anger issues. we also decided to start working really hard with Lexi on her talking app and see if that helps the frustration. i hope so because something has to give she can't continue to be mean to kids. then we went to speech therapy and her therapist and i had a nice talk. she said that besides oral apraxia she feels Lexi has some oral mouth weakness. so Lexi has a double whammy with that. but good new in physical therapy she peddled the bike on the carpet for the first time.

new pics




Tuesday, February 21, 2012

at a stand still

lexi turned 4 on sunday and i still cant believe she is 4. she has grown up in the last yr. last year she had a pacifier and didnt use the potty. now she is almost potty train and has been off the pacifier for over 5 or 6 months. as for the next couple weeks they are gonna be busy since it seems like lexi has at least one dr appointment a week plus she still has ot, pt, and speech once a week. i just hope this dr appointment goes ok this week and i dont get mad at the dr. shes rude and arragant and i dont take to those people to kindly. then on the 6th she meets with the sleep specialist and im hoping to get good news and find out why shes making the noises she does in her sleep. it freaks me out

Wednesday, February 15, 2012

genetic results

well we got the results from the genetesist and there is nothing genetically wrong with her. they said that anything the neurosurgeon sees is probably anatomical but not genetic. that is good and bad because now we have no answers still just more questions.

Friday, February 3, 2012

therapy and a new iep

so yesterday Lexi had pt first thing in the morning. she did wonderful and even peddled the bike around the gym 2 times with little assistance from miss Tricia. she then had speech and it went a lot better than last week. she worked very hard and didn't have any meltdowns. after speech we went to Lexi's school and she was excited to show me who her teacher was and her class room. she is doing wonderful in school progressing like she should so that's very good. she does get a little aggressive when kids get to close or they want to play with a toy she thinks she should have. as far as next year they want her to go to summer school this year so she doesn't forget what she has learned. then next school year they want her to go to the stars academy which will work on her talking a lot. she will go to that class on Mondays and Wednesdays. then on Tuesdays,Thursdays, and Fridays she will go to the reach program which she is already in. I'm excited for her to be able to go to these classes because I think in the long run it will help her out a lot. I've seen how far she has grown in the last year and I can't wait to see how much further she progresses in the next year. Her birthday is in 17 days. Its hard to believe she will be 4 where has the time gone seriously. Health wise she is doing good her blood work came back normal so no worries there. we go see  genetics the 15 and i hope we get answers but if not I'm OK with it.