Monday, December 12, 2011
long overdue update
sorry for the lack of posts but between being busy and just not knowing what to write puts me behind. this past wednesday me and my mom took lexi down to riley childrens hospital to meet with the neurosurgeon. she said there is definitly a mass near her pituitary gland but she is not sure what it is. but she said it is her job to figure it out and she will. so we have to go back down to meet with an endocrinologist, an eye dr, have another mri done and meet with the neurosurgeon again. she also said that while the radiologist and her was looking at the scans that her brain receptors are not wired right. so what does that mean right now we dont have a clue. we are hoping to get some answers when we get the results from the genetiscist because she said there is definitly something wrong with lexi they are just not really sure what at this point. the good news is she hasnt had any seizures in almost 2 months. bad news is she still isnt talking and shes almost 4 yrs old.