just a couple pictures

Therapy

As I sit here while Lexi is doing her speech therapy it makes me wonder where she will be next year. Will she still not be able to talk that much or will next year be the year she starts communicating. I really hope so cuz I think some of her frusteration will go away. As for occupational therapy I don't see any progress at all. She still has alot of sensory issues. And hopefully soon she will begin physical therapy. Cvs has officially made me mad by doing away with liquid melatonin.

what a week

so as i said in my last post lexi had a seizure sunday night. well monday she had 3 more 1 of which was at the dr office so she called an ambulance and had her admitted for observation. she stopped running a fever on tuesday morning so she was released. wednesday she was fine but yesterday was plain horrible. she whinned the whole day which started by having to go to the developmental ped. she screamed and cryed the whole time but the developmental ped was able to say she wants lexi to have an eeg. we have to go back to her in a month. speech therapy was just as bad with her whinning. but then we went to her follow up appointment with her ped and found out once again shes running a fever. which of course caused another seizure.

always something

after i posted the last blog lexi had another two seizures before 830. so i called her pediatrician and they told me to come in. well i packed extra clothes just in case and we was on our way. they took us back and took her temp it was 102 again. so they tried getting her to take advile and she spit that on the dr so we undressed her and put wet blankets on her. the dr left the room and told me to yell if she started having another seizure. not even 5 minutes later lexi started seizing in my arms. so i yelled to the dr and she came running. she then looked at me and said she has to be admitted this is not normal. she called for an ambulance and off we went to the er. my sister in law bless her heart went into her work and explained what was going on and came to be at the hospital with me. they did blood tests,xrays, urine samples and nothing came up in any of them. they dont understand why she had a fever or why she was having seizures. we got released today after she hadnt had a fever for 12 hours

er visit

so last night i knew something was wrong lexi was whining more and i assumed it was her belly that was causing her trouble. so i laid her in her bed and laid down myself. at 930 i heard chocking noises and then i heard her fall off her bed. i got up and turned on the light and saw that she was actually having a seizure. so i ended up calling 911 and having them take her to the hospital since shes never had a seizure and i wasnt sure what caused it. we got to the hospital and she was running a 102 fever and she threw up. they did blood work and an x ray and said she has the start of pnemonia. well at least we caught it early just wished she wouldnt have had the seizure cuz it scared the crap out of me. as im writing this she is laying watching dora and running a fever again.

ranting

my mom took lexi to her occupational therapy on monday since i had to work. i guess while there the therapist looked at my mom and said lexi doesnt have autism what she has is sensory problems and adhd. first of all my daughter was diagnosed by a developmental dr who spent 3 hours evaluating her and said she has autism and sensory integration disorder. she also was diagnosed by the disability doctors and an autism specialist that works at the school she goes to. so for her therapist to say she doesnt have autism is plain stupid. they dont see how she acts everyday. they dont see her meltdowns and everything we go through with her. i agree she has sensory problems but everyone can see she also has autism.