Sunday, February 2, 2014

january update

didn't even realize that i haven't updated since Christmas time. oops the beginning of january we got hit with a big snow storm and artic blast so we was out of school for a few days and out of work as well. at that time my car decided to hate me and break down as well. got it fixed and all is good. janauary was a bad month for seizures. we have increased her banzel and decreased keppra and im thinking keppra was controling the seizures more than i thought. she is going to be having another eeg sometime soon to see what it says. we also just started her on risperdol to see if that will help with meltdowns. im hopeful because something has to give. we just had her iep meeting and the teacher says shes in the 3rd percent of what she should know so we agreed to hold her back and have her repeat kindergarten again next year. the autism specialist said that kids with autism have trouble retaining the information so that explains why one day she seems to know something but the next day she doesn't. she has made progress with writing her name and with making friends. they will be working harder with the ipad and are actually going to see if the new program called lamp will work better for her than proloquo. im all for trying a different talking app if it will help her communicate with her peers and in class. im glad she is learning and is making progress even if it is slow progress. this month her birthday is coming up along with 3 dr appointments so far with probably more being made.


  1. Bless your heart, you are handling a lot! Lexi is absolutely adorable, I'm sorry it's been so hard. Praying the Banzel works!! It's tough when your babies aren't healthy.

    1. thank you yes its alot and the banzel isn't working yet either :(