Sunday, April 7, 2013

the last couple days

Oh my what a roller coaster this week has been. On Thursday lexi started to bleed a lot from around the g tube. more than iv seen and more than just from from the skin being rubbed on. So when I got home I called her doctor and after telling him it was still bleeding and she was in pain he told me to go to the hospital and that he would have her be admitted and we would get the g tube out and put the mic-key button in depending on what he finds in there. So we get to the er and they take us right back. well when the er doctor came in he told me there was no reason to be admitted and that he wanted to change the tube right there. i told him under no circumstance was he taking out her g tube and that he better go call her GI doctor. So then to get back at me the er doctor told her doctor that it wasn't bleeding and that it was just to close to her skin. So her doctor decided based on that not to admit her. The er doctor came in and had 5 other nurses hold lexi down and pulled her tube away from the skin. All of this took 5 hours which was totally unnecessary. Then Friday the doctor called and said he wanted to get her tube removed this Monday. Well medicaid said no so now we have to wait until the 15th. Its just stupid that she has to go through so much when its unnecessary. Plus on top of it all lexi has decided that 3 am is a good time to wake up and stay awake. Honestly what child wakes up at 3 and is ready to play lol. During speech on Friday her therapist decided that because lexi isn't progressing as well in verbal language that it is defiantly time to start teaching lexi to sign what she wants and needs. I'm impressed to say that after one session of teaching her animal signs she knows how to do them pretty well.

1 comment:

  1. Sometimes it just never seems to end...(((hugs)))